Q & A
Q – How much practice with the stories will my child need?
A – The younger the child, the more practice needed. We encourage three readings. Some children in our field trial used My Pain Alert training to communicate their exact pain needs hours after the first parent/child reading. The book has research information to help you determine your child’s ideal practice amount in the Annotated Bibliography.
Q & A
Q – My child is a ” hands on” learner, what do you have for him?
A – We are working on a cube for individuals to hold while listening to the stories. The cube shows a pain level on each side, so they can participate by showing you the level you are reading about. Contact Us and join our email and we will let you know when and where it is available.
Q & A
Q – My child has trouble describing his pain, what do you have for him?
A – We are working on a pyramid for individuals to hold while listening to the stories. It shows types of pain using child appropriate vocabulary and images. Like the pictures in the print book and download the pyramid simplifies comparing pain levels and showing where it hurts.Contact Us and join our email and we will let you know when and where it is available.
Q & A
Q – My child is an infant with a pain condition, what do you have for him?
A – We are working on a song with a verse and a vowel sound for each pain level . Our hope is for parent/caregivers to play the verse which fits the medication while giving it, and model saying the vowel sound. This musical conditioning could help train and encourage communication for pain management. Contact Us and join our email and we will let you know when and where it is available.
Q & A
Q – Can I make a contribution to your efforts to improve children’s pain management?
A – Yes! Start keeping Care Giver Notes on your loved one’s pain and be ready to share them with your medical provider at the next appointment.
My Pain Alert TM Communication Tool teaches appropriate functional responses to pain situations, and provides options to communicate those responses. We believe this book will especially help parents of very young children having pain issues. Gail used her 40+ years of experience as a Speech Language Pathologist working in a variety of settings to shape it to be inclusive of people of all ages. She designed it for communication difficulties including: neurological, hearing, vision, and autism spectrum impairments. It is not intended to be a comprehensive pain assessment. It is a learning tool for ordinary people, and a support tool for the medical professionals tasked to diagnose pain. Once the patient demonstrates understanding of the process, then other scales can be used with it. Use of realistic line drawings was intentional, to make this tool age neutral. The My Pain Alert TM Scale requires training for effective use. That is the purpose of the My Pain Alert TM stories, with signing, and song.
1. To reduce the fear of the unknown that comes with pain.
2. To target the very young emphasizing the story aspect of pain events. The stories stress understanding that pain is a part of life with an expected set of responses, just like bowel and bladder needs, or making requests and appreciating results.
3. To target those with communication reductions, giving them knowledge of how to participate before fear of worsening pain takes over and causes them to lash out physically. It teaches when and how to ask for help with pain.
4. To create the greatest possible public exposure to our products. We would like many people in different situations to try our tool and give it a review.
Our Call for Research
When medical professionals do not have nice, clean, double blind studies of large populations on which to base their course of treatment, the quality hierarchy leads them to looking at the data from smaller studies and single subject case studies of patients with similar issues.
We have no university or medical institutional affiliations, so our solution is to include Care Giver Notes and Facility Data Collection plans in our training product. Our wish is that the power of the worldwide web will stimulate the needed research.
Our hope is that our parent and caregiver users will record their practice and use data for each pain sufferer, offering a copy to the medical professional charged with treating their loved ones. This data can document the caregiver’s input as an active part of the treatment team. It provides the medical professional with “at the time of the pain” information, which is generally better than relying on recall. Another hope is that by having data recorded in a consistent fashion, some conclusions may be drawn about patients who share the same combination of disorder(s). Our computer connected world make this, at least, a possibility.
The first purpose of the facility data is quality assurance cost saving. People acting out in response to pain: require extra manpower, destroy materials and equipment, and disrupt the treatment. We respectfully ask institutions to record “pain scale familiarity” data on all their admissions, essentially asking the question: Does pain response training make a difference in the cost of care? We believe it will. See Research.
When I started as the first SLP at a nursing care facility in a small rural town, a severely spastic non-verbal adult was in skilled care there. He received my therapy for more than a year. I created a means for him to communicate, and proved that he could feed himself modified food, and was not lacking intelligence. This changed how people reacted to him. This eliminated his need for skilled care, as well as, losses of nursing staff due to injuries occurring while treating him. The cost savings for this one patient was over ten thousand dollars a year over the next decade of his residence in that facility.